Needs of persons with dementia and their family caregivers in dementia cafés

Chie Fukui; Mahiro Fujisaki-Sueda-Sakai; Nobutada Yokouchi; Yuka Sumikawa; Fumika Horinuki; Ayako Baba; Makoto Suto; Hiroko Okada; Ryogo Ogino; Hyosook Park; Junichiro Okata

doi:10.1007/s40520-019-01129-2

Needs of persons with dementia and their family caregivers in dementia cafés

Chie Fukui, Mahiro Fujisaki-Sueda-Sakai, Nobutada Yokouchi, Yuka Sumikawa, Fumika Horinuki, Ayako Baba, Makoto Suto, Hiroko Okada, Ryogo Ogino, Hyosook Park, Junichiro Okata

Research output: Contribution to journal › Article › peer-review

10 Citations (Scopus)

Abstract

Background and aims: Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan. Methods: Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis. Results and discussion: A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers’ experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly. Conclusions: Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.

Original language	English
Pages (from-to)	1807-1816
Number of pages	10
Journal	Aging Clinical and Experimental Research
Volume	31
Issue number	12
DOIs	https://doi.org/10.1007/s40520-019-01129-2
Publication status	Published - 2019 Dec 1
Externally published	Yes

Keywords

Expectation
Informal service
Japan
Qualitative study
Requirement

ASJC Scopus subject areas

Ageing
Geriatrics and Gerontology

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10.1007/s40520-019-01129-2

Cite this

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title = "Needs of persons with dementia and their family caregivers in dementia caf{\'e}s",

abstract = "Background and aims: Several studies have shown the effectiveness and diversity of dementia caf{\'e}s, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia caf{\'e}s in Japan. Methods: Interviews and participant observations were conducted in nine dementia caf{\'e}s. Study participants were persons with dementia, their caregivers, and the staff in dementia caf{\'e}s. Data were analysed using qualitative content analysis. Results and discussion: A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia caf{\'e}. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers{\textquoteright} experiences; and to keep in touch with others inside and outside of the dementia caf{\'e}. The needs of persons with dementia and family caregivers differ partly. Conclusions: Dementia caf{\'e}s should create programmes and comfortable environments answering to the differences of their needs.",

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note = "Funding Information: The authors express their gratitude to all the participants interviewed who were willing to talk about their thoughts and experiences, and to the administrators who accepted and cooperated with this study. This study was financially supported by GLAFS. GLAFS is a graduate programme in gerontology at the University of Tokyo. Funding Information: The authors express their gratitude to all the participants interviewed who were willing to talk about their thoughts and experiences, and to the administrators who accepted and cooperated with this study. This study was financially supported by GLAFS. GLAFS is a graduate programme in gerontology at the University of Tokyo. Publisher Copyright: {\textcopyright} 2019, Springer Nature Switzerland AG.",

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AU - Fujisaki-Sueda-Sakai, Mahiro

AU - Yokouchi, Nobutada

AU - Sumikawa, Yuka

AU - Horinuki, Fumika

AU - Baba, Ayako

AU - Suto, Makoto

AU - Okada, Hiroko

AU - Ogino, Ryogo

AU - Park, Hyosook

AU - Okata, Junichiro

N1 - Funding Information: The authors express their gratitude to all the participants interviewed who were willing to talk about their thoughts and experiences, and to the administrators who accepted and cooperated with this study. This study was financially supported by GLAFS. GLAFS is a graduate programme in gerontology at the University of Tokyo. Funding Information: The authors express their gratitude to all the participants interviewed who were willing to talk about their thoughts and experiences, and to the administrators who accepted and cooperated with this study. This study was financially supported by GLAFS. GLAFS is a graduate programme in gerontology at the University of Tokyo. Publisher Copyright: © 2019, Springer Nature Switzerland AG.

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Y1 - 2019/12/1

N2 - Background and aims: Several studies have shown the effectiveness and diversity of dementia cafés, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafés in Japan. Methods: Interviews and participant observations were conducted in nine dementia cafés. Study participants were persons with dementia, their caregivers, and the staff in dementia cafés. Data were analysed using qualitative content analysis. Results and discussion: A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia café. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers’ experiences; and to keep in touch with others inside and outside of the dementia café. The needs of persons with dementia and family caregivers differ partly. Conclusions: Dementia cafés should create programmes and comfortable environments answering to the differences of their needs.

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Needs of persons with dementia and their family caregivers in dementia cafés

Abstract

Keywords

ASJC Scopus subject areas

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