TY - JOUR
T1 - Adolescent Carers' Psychological Symptoms and Mental Well-being During the COVID-19 Pandemic
T2 - Longitudinal Study Using Data From the UK Millennium Cohort Study
AU - Nakanishi, Miharu
AU - Richards, Marcus
AU - Stanyon, Daniel
AU - Yamasaki, Syudo
AU - Endo, Kaori
AU - Sakai, Mai
AU - Yoshii, Hatsumi
AU - Nishida, Atsushi
N1 - Funding Information:
This work was supported by the Ministry of Health , Labour Sciences research grant from the Ministry of Health, Labour, and Welfare of Japan (grant number 19189500 ); the Grant-in-Aid for Scientific Research on Innovative Areas from the Ministry of Education, Culture, Sports, Science, and Technology of Japan (grant numbers JP23118002 , JP16H06398 , and JP16H06395 ); the Grant-in-Aid for Transformative Research Areas from the Ministry of Education, Culture, Sports, Science, and Technology of Japan (grant numbers JP21H05171 , JP21H05173 , and JP21H05174 ); and the UK Medical Research Council [grants MC_UU_12019/1 and 3 ]. The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript.
Publisher Copyright:
© 2022 Society for Adolescent Health and Medicine
PY - 2022/6
Y1 - 2022/6
N2 - Purpose: During the COVID-19 pandemic, adolescent carers in the UK may have experienced psychological distress owing to increased caring burden and loss of a break from their caring role. This study investigated longitudinal association between adolescents' caring status and mental health outcomes from 2018/2019 to February–March 2021. Methods: The participants (n = 3,927) answered mental health questions in both the Millennium Cohort Study sweep 7 survey (age 17 years in 2018/2019) and at least one of three waves of the COVID-19 survey from May 2020 to February–March 2021. Caring status at the age of 17 years was assessed using a single question regarding whether the participant regularly looked after anyone who needed care, without being paid. Outcome measures were psychological symptoms, measured using the Kessler Distress Scale, and mental well-being, measured using the Warwick-Edinburgh Mental Well-being Scale. Results: Compared with 3,616 noncarers, 311 (7.9%) adolescent carers reported significantly higher Kessler Distress Scale and lower Warwick-Edinburgh Mental Well-being Scale scores during the pandemic. These associations were largely explained by psychosocial risk factors. Worse outcomes were associated with poor sleep quality, attempted suicide at baseline, low social support, and a strong feeling of loneliness during the pandemic. These factors were significantly more likely to be observed among adolescent carers than noncarers. Discussion: UK adolescent carers exhibited worsened mental health outcomes one year after the first national lockdown. This increased distress may be attributable to psychosocial risk factors during the pre–COVID-19 and current COVID-19 periods, and they require psychosocial support.
AB - Purpose: During the COVID-19 pandemic, adolescent carers in the UK may have experienced psychological distress owing to increased caring burden and loss of a break from their caring role. This study investigated longitudinal association between adolescents' caring status and mental health outcomes from 2018/2019 to February–March 2021. Methods: The participants (n = 3,927) answered mental health questions in both the Millennium Cohort Study sweep 7 survey (age 17 years in 2018/2019) and at least one of three waves of the COVID-19 survey from May 2020 to February–March 2021. Caring status at the age of 17 years was assessed using a single question regarding whether the participant regularly looked after anyone who needed care, without being paid. Outcome measures were psychological symptoms, measured using the Kessler Distress Scale, and mental well-being, measured using the Warwick-Edinburgh Mental Well-being Scale. Results: Compared with 3,616 noncarers, 311 (7.9%) adolescent carers reported significantly higher Kessler Distress Scale and lower Warwick-Edinburgh Mental Well-being Scale scores during the pandemic. These associations were largely explained by psychosocial risk factors. Worse outcomes were associated with poor sleep quality, attempted suicide at baseline, low social support, and a strong feeling of loneliness during the pandemic. These factors were significantly more likely to be observed among adolescent carers than noncarers. Discussion: UK adolescent carers exhibited worsened mental health outcomes one year after the first national lockdown. This increased distress may be attributable to psychosocial risk factors during the pre–COVID-19 and current COVID-19 periods, and they require psychosocial support.
KW - Adolescent
KW - COVID-19
KW - Family caregiving
KW - Mental well-being
KW - Psychological
KW - Symptoms
KW - Young carers
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U2 - 10.1016/j.jadohealth.2022.01.228
DO - 10.1016/j.jadohealth.2022.01.228
M3 - Article
C2 - 35288005
AN - SCOPUS:85126316161
SN - 1054-139X
VL - 70
SP - 877
EP - 884
JO - Journal of Adolescent Health
JF - Journal of Adolescent Health
IS - 6
ER -